Saturday, July 27, 2002

We just got our first bill from Parkland. And it's a doozy! I'm so thankful we have insurance! The bill was $12,257.82...included everything except the doctors from what I can tell. It has a pharmacy charge of $70...if that's the two Tylenol he took, that's a tad expensive! ;-) There's a double portion for the SPECT scan, so I suppose I'll be calling them on Monday to find out why there are two charges for it, since he only had one SPECT scan! Maybe one is the dye, and the other is the actual scan. I'm not whining about this bill, but I hope it helps others about to go through the testing to see how much each phase of this costs. We really had no idea WHAT to expect on this bill. It's actually more than I thought it would be. I was figuring around $10,000. We should have taken bets on how much it was, then we could afford to pay it off! ;-)

Larry had his longest seizure-free spell in a while this week! He went four days without a single spell...not even a dizzy spell! YAY! Maybe this Lamictal will at least get us through the surgery! I hope! He's doing well and feeling well, and I appreciate all your prayers and concern! Thanks so much!

Tuesday, July 23, 2002

I've started my new pet project..."Faces of Epilepsy." I've asked people from the Epilepsy List I'm on to send me their stories and photos. I want to make people more aware that anyone you know can have Epilepsy. The address is at: http://www.facesofepilepsy.com and is definitely a work in progress. So far I ONLY have the first page asking for stories. I've already received several stories and photos and am so excited about this project. I need to start collecting links to put on the informational section of the site. I've also had someone already ask if they can help with the project. I can't tell you how much that means to me that someone else is seeing this need.

The Epilepsy Foundation has been back in touch with me. I'm also trying to get a support group going here in Carlsbad for Epileptics. We have no neurologists in this town, so anyone having any kind of brain anything has to go to either El Paso, Lubbock, or Midland for help...or in our case...on to Dallas. Maybe we can all support and help each other like our Epilepsy List is dong virtually. I will hopefully hear back from them either today or tomorrow regarding a support group. :))

Larry is still having seizures daily. No more grand mals since Friday, but since that's his unusual seizure, it's no surprise really. This waiting is getting very difficult. We are now thinking about all the what-if's of the surgery. I just want to spend so much time with him right now. What if things change after the surgery and he's not the same person he is now? I'm trying not to let the doubts get to me, and I know the doctors will test for all these possibilities, but the thoughts are still frightening. I just have to trust that God will wrap his arms around Larry and protect him. Right? I'm learning what the Bible means when Paul says to "pray without ceasing". I think that's been the case in my life since this all began.

Okay...enough of the doubting and whining. I'm still praying that this surgery WILL move forward and cure Larry of his seizures!